Stacy Ellingen is a woman from Wisconsin who’s never met an obstacle she couldn’t overcome. After graduating from high school, Stacy left home to attend the University of Wisconsin-Whitewater. After graduating with a degree in journalism and advertising, she moved to Oshkosh. Now in her thirties, Stacy leads a busy professional life as a small business owner and an independent contractor with InControl Wisconsin, an organization that plays a key role in advancing self-directed supports in the state. She’s become more involved in disability advocacy efforts and the community.

Stacy’s story is a successful one—living independently for more than five years, finding a job about which she is passionate and becoming involved in her community. But now consider this success as part of Stacy’s larger story – she grew up with cerebral palsy, resulting in complex physical support needs. However, Stacy grew up believing that she could do everything others do. Working with her self-directed support consultant, Kathi Miller, an employee of TMG by Magellan Health, Stacy proved she could do everything others do.

“Kathi has helped me reach my goals in many, many ways,” Stacy said. Kathi and Stacy joined forces to identify community home care providers to support Stacy in meeting her daily needs at home and at work. They partnered to identify ways that Stacy could make responsible budget decisions in purchasing services to meet her goals. When developing her small business, Kathi supported Stacy in connecting with the local business community to create professional peer connections that enhanced her business development strategies. “Most of all though, Kathi encouraged me to keep moving forward when things got tough! She has been amazing!” said Stacy.

Thirty years ago, President Ronald Reagan deemed March to be Developmental Disabilities Awareness Month. Awareness months are an important advocacy tool, as they provide opportunities to reflect on progress and continue meaningful conversations about the future. For many people with developmental disabilities, ensuring these discussions take place can be the difference between being invisible and living as full citizens in their communities.

Developmental disabilities awareness is something near and dear to me, not only as the president of TMG by Magellan Health—supporting the largest self-directed long-term services and supports program of its kind in the country—but also because of my graduate work. During my practicum, I worked on the South side of Chicago, assisting low-income families who had children with developmental disabilities. Too often, these families, many of them single mothers, struggled to find the necessary services to help their children live as independently and inclusively as possible. The isolation the children experienced was heartbreaking.

Fortunately, in the 20 years since then, I’ve seen wonderful strides in the resources available for people with developmental disabilities, as well as greater expectations for community inclusion. Self-direction has played a crucial role in this progress. With self-direction, individuals choose not only the services they receive and who provides them, but also how they live their lives. This means people have control over things many of us take for granted: living where and with whom we want; making our own schedule; having meaningful, lasting relationships; pursuing our hobbies and passions; and finding meaningful work or volunteer opportunities. There’s been an amazing nationwide movement towards self-direction, which is not only a best practice, but also the cornerstone of TMG’s work in Wisconsin’s innovative IRIS (Include, Respect, I Self-Direct) program.

While there’s been great progress in raising expectations and increasing opportunities and resources for individuals with developmental disabilities, there’s still much to overcome on the path towards greater acceptance and inclusion. Thankfully, as community inclusion and self-direction are becoming more commonplace, society increasingly recognizes the contributions that people with developmental disabilities can make. As a leader in helping individuals create healthy, vibrant lives, Magellan Health is at the forefront of self-direction with its Wisconsin program, and is building a strong self-direction component in its new managed long-term services and supports (MLTSS) program, Magellan Complete Care of Virginia.

So as you make your way through March, take time to think about the people in your life and in your community and how we can all support one another. Learn how to be a better advocate for individuals with disabilities at sites such as ACL.gov and NACDD.org, and read stories of self-direction in TMG’s The Path Ahead. Encourage and support inclusion and independence whenever you can. But mostly, take the time to get to know people for who they are and appreciate their individual gifts and talents.

“Every citizen has gifts. A strong community knows it needs everyone to give their gifts.”

– John McKnight, Asset Based Community Development (ABCD) Institute

In supporting people with disabilities in our communities, it is important to shift from using a lens shaded by needs and wear one focused on seeing people’s strengths, talents and assets. This new lens reflects the potential of each person and helps to move the conversation from one marked by:

• listing the services a person may need, to one identifying the contributions an individual can make,
• seeing a consumer as a user of services, to one recognizing a citizen who can access shared resources and have valued roles in their community, and
• viewing programs with limited resources, to one recognizing relationships and connections to one’s community with endless possibilities.

The 2016 conference for TASH, an international advocacy organization, provides a unique opportunity for people with disabilities, their family members, other advocates, and people who work in the disability field to come together and learn about strategies that meet the objective of this year’s conference to “reignite their passion for an inclusive world.” I led an interactive session that engaged participants in using tools to clear the path to inclusion, employment and community connections. Attendees learned how to use strength-based strategies to expand and translate their interests, gifts and talents into real connections and a better quality of life.

These strategies, when applied to community inclusion for people with disabilities, are based on an exploration of an individual’s gifts of hand, heart, head and human connection. Gifts of the hand are the things we know how to do. These are our skills, habits or rituals that we learn or naturally possess. Gifts of the heart include our passion or things we care enough about to give of our time and effort. Gifts of the head are the things we know or want to learn about, such as an interest in a local sports team or in a hobby. Gifts of human connections are the people we know and who know us – often called our social capital.

For decades, we have kept those who are different from us, including people with disabilities, separated from the community or segregated in spaces society thinks they feel more comfortable and can live in more safely. While approaches to school inclusion and community living strategies have tried to address this, these efforts have often been more focused on meeting the needs of professionals or systems, as opposed to the needs of people. Far too many people living in their communities are segregated from typical experiences and do not have access to opportunities they deserve as citizens. However, when we support people to create connections to others in their communities based on their natural gifts and assets, opportunities for real inclusion develop.