What is neurodiversity?

 Everyone’s brain is different and develops in its own way. Neurodiversity refers to diversity in the ways in which people experience the world, be it at school, at work or in social settings. Neurotypical individuals’ brain functions are considered “usual” or “expected by society.”

Understanding neurodivergence

Individuals naturally approach thinking in various ways. Neurodivergent individuals’ brains are unique and their behaviors or responses differ from what is expected socially, physically or verbally. Approximately 15-20% of the population is neurodivergent. Some of the most prevalent conditions among individuals who identify as neurodivergent are:

Myths and facts about neurodiversity

 Understanding neurodiversity and the specific challenges neurodivergent individuals face is crucial for creating inclusive and supportive environments. By educating ourselves, we can dismantle stereotypes and stigmas that inadvertently affect others.

Myth: Neurodiversity is the same as ASD.

Fact: Neurodiversity includes ASD, as well as other neurological conditions, such as ADHD, dyslexia, dyspraxia, intellectual disabilities, Tourette’s syndrome, obsessive- compulsive disorder (OCD) and other mental health conditions.

Myth: All neurodiverse individuals are the same/similar.

 Fact: All individuals, whether neurotypical or neurodiverse, are unique in their learning and experiences. Recognizing the diversity within neurodiverse individuals is key to developing inclusive environments.

Myth: Neurodivergent individuals lack communication skills. 

Fact: Like neurotypical individuals, neurodivergent individuals have diverse communication styles. Many communicate effectively in their own unique ways. Tailoring communication strategies to diverse styles fosters inclusivity and supports personal growth.

Myth: Neurodivergent individuals choose not to engage in forming relationships.

Fact: Many neurodivergent individuals genuinely desire connections with others but often feel sadness or a sense of isolation when faced with difficulties in forming those connections. Nonetheless, they can have authentic, enduring relationships, particularly when others are accepting and mindful of their differences.

Myth: Neurodivergent individuals have little chance of succeeding in school, at work or in their communities.

Fact: With equitable opportunities and tools, neurodivergent individuals can be just as successful as others.

Famous neurodivergent personalities

 Many well-known individuals are neurodivergent and have made extraordinary contributions to our world.

• Benjamin Banneker—Self-taught African American mathematician, astronomer and inventor who was appointed by President George Washington to assist in the surveying and planning of Washington, DC
• Simone Biles—African-American gymnast who has won numerous Olympic and World Championship medals and is considered one of the greatest gymnasts of all time
• Tim Burton—American filmmaker, artist, writer and animator known for his unique and imaginative film style, including “Edward Scissorhands” and “The Nightmare Before Christmas”
• Lewis Carroll— English writer, mathematician and photographer who is best known for his literary works, particularly “Alice’s Adventures in Wonderland” and “Through the Looking-Glass”
• Bill Gates—Co-founder of Microsoft and a leading figure in the development of personal computing
• Thomas Jefferson—One of the Founding Fathers of the United States, principal author of the Declaration of Independence, and third president of the United States
• Michaelangelo—Italian Renaissance sculptor, painter, architect and poet who is renowned for masterpieces like the Sistine Chapel ceiling and the statue of David
• Nikola Tesla—A Serbian-American inventor who made significant contributions to the development of alternating current (AC) electrical systems and other inventions
• Emma Watson—English actor and model known for her role as Hermione Granger in the “Harry Potter” film series and being an advocate for women’s rights

Neurodiversity involves acknowledging and valuing the diverse ways our brains work. Neurodivergent individuals experience, interact with and interpret the world in distinctive ways. When we appreciate and celebrate neurodiversity, we cultivate inclusive communities that allow neurodivergent individuals to thrive.

 How can I learn more about neurodiversity and neurodivergence?

Find more information and helpful resources at MagellanHealthcare.com/Autism-Resources, including online and tech-enabled resources to help neurodivergent individuals navigate daily life and empower parents, families and caregivers to support children on their journeys.

Sources:

• Debunking Myths About Neurodiversity in the Workplace | by Stephanie Barnes | Medium
• Debunking The Neurodiversity Myths – eLearning Industry
• Famous Neurodiverse Individuals – CASS (casscounselling.co.uk)
• Successful People with Neurodivergent Disabilities – Student News (manchester.ac.uk)

For July Black, Indigenous and People of Color (BIPOC) Mental Health Awareness Month, we are pleased to share our e-interview with Dr. Tonicia Freeman-Foster, Ed.D, CDP, CHES®, PMP, co-founder and principal consultant at Kusudi Consulting Group, and change specialist at Change Matrix, on mental health for Black people and African Americans

Magellan: What are some sources of stigma related to mental health treatment in Black communities?

Dr. Freeman-Foster: One source of stigma stems from slavery where Blacks and African Americans were deemed to be strong so that they could do the work. There were adverse consequences, including death, for those who were deemed to be weak. Because of this, in so many ways we have internalized strength to mean that you have to be able to do the work. You must be able to always put on a smile, even when you are sad or not feeling well. We have internalized this to the point of when we are not feeling well, we feel the judgment of it as a weakness or being lazy. This is why the message “it’s okay not to be okay” is critical, and it’s critical that we as Blacks and African Americans say it, practice it, and live it. Mental health is health too.

Another huge factor is the intersection between mental wellness and faith. There is some belief that if you are feeling sad, then you probably did not pray enough, or you do not believe in God enough, or that you do not have enough faith. The belief that overall, you are weak spiritually. No one wants to be seen as weak, and so as a result we do not seek help. It’s important that we understand that we can do both simultaneously. We can seek earthly help for our mental wellness AND we can pray too.

Magellan: Tell us about your presentation Equity as an Expectation on August 30th at 2:00 p.m. ET.

Dr. Freeman-Foster: With Equity as an Expectation (information and free registration under Upcoming Events here), we will explore strategies to create an environment where people, no matter their demographics or life experiences, can expect that they will receive culturally responsive services in an equitable manner and have equitable outcomes.

The reason that equity is missing in a lot of our programs and services is because it has been allowed to be optional. I compare it to a grocery store. You have young adult services on aisle five, HIV services on aisle six, mental health services on aisle seven, substance use services on aisle eight, physical health on aisle nine, and then equity on aisle three. If we truly want to make a positive impact in all our interactions, then equity must be the shopping cart. It must be the first thing that you come in the door with, and the thing that everything builds on top of. It is about interweaving equity practices into everything that we do, versus having equity as an optional standalone practice. There must also be accountability measures in place for all team members, and a consistent process for reviewing progress, outcomes measures, and follow-up actions.

Dr. Tonicia Freeman-Foster has over 20 years of experience in cultivating hope, resiliency, and wellness through her work with underserved persons and marginalized communities. She is passionate about her work in assisting organizations and leaders in understanding how their beliefs and actions impact diversity, equity, inclusion, belonging, and justice for staff, clients, and communities. Dr. Freeman-Foster possesses extensive experience in matters related to mental health, substance use, child welfare, HIV/AIDS, and LGBTQ+, youth and young adult, women, Black, Indigenous, and People of color (BIPOC) populations. 

Dr. Freeman-Foster is the co-founder and principal consultant at Kusudi Consulting Group, and she also currently serves as a change specialist at Change Matrix. In these roles, she provides training, technical assistance, and coaching to individuals, communities, and organizations throughout the nation. In her previous role, Dr. Freeman-Foster served as project director of the Florida Healthy Transitions program and led the development of an innovative peer-to-peer behavioral health model for youth and young adults. Dr. Freeman-Foster possesses a Bachelor’s degree in Health Science Education (Community Health) from the University of Florida, a Master’s degree in Human Services (Organizational Management and Leadership) from Springfield College, and a Doctorate degree in Education (Organizational Leadership) from Argosy University. Dr. Freeman-Foster is a Certified Diversity Professional, Certified Health Education Specialist, Certified Courageous Conversations About Race™ Practitioner, and Certified Project Management Professional.

This is an excerpt from the Magellan Healthcare eMpowered for Wellness July 2021 newsletter. To read the full article, go here. For more information and resources to support BIPOC mental health, and to register for Dr. Freeman-Foster’s continuing education credits-eligible webinar, visit MagellanHealthcare.com/BIPOC-MH

As we observe National Minority Mental Health Awareness Month, we sat down with Dr. Rakel Beall-Wilkins, a former Magellan Healthcare medical director.

 Magellan Health Insights: Dr. Beall-Wilkins, thank you for speaking with us today. Of course, everyone’s mental health is critical, but why is it important to pay particular attention to the mental health of Black, Indigenous and People of Color (BIPOC)?

Dr. Rakel Beall-Wilkins: We know that mental health conditions can be successfully treated. However, BIPOC are significantly less likely to receive treatment for mental health conditions, including substance use. And it’s reaching crisis levels, especially among our young people. For example, suicide is now the third leading cause of death among African American males who are 15-24 years old.

Magellan Health Insights: What are the barriers to BIPOC receiving high quality mental health treatment?

Dr. Rakel Beall-Wilkins: BIPOC are less likely to seek treatment, both for their physical and mental health. However, when they do reach out for assistance, they are less likely to receive consistent, high-quality treatment.

There are many contributing factors to these barriers. The high costs of care can be a deterrent. Most BIPOC in the U.S. (with the exception of Asians) have higher than average rates of poverty. BIPOC are more likely to lack insurance coverage, and may only seek emergency care, which costs more and is less effective than sustained treatment. Medications or diagnostic procedures may be viewed as too expensive. Or reliable transportation for follow-up care may not be available.

There are also what are called the social determinants of health (SDoH). These include factors such as consistent transportation, the availability of healthy food, safe and affordable housing, access to education, public safety and working conditions. BIPOC are more frequently negatively impacted by the SDoH. For example, these members are more likely to be homeless or move frequently, which interferes with maintaining consistent treatment. They may lack adequate nutrition and are at greater risk for having associated medical conditions like hypertension or diabetes.

Further, the stigma around mental health conditions, while improving, is still a deterrent to seeking treatment—for everyone. Some cultures may see it as taboo to request help or be seen as someone who needs help.

When BIPOC patients do seek treatment, there may be no one available who speaks their language. In some clinical settings I’ve been in, it could take a week to arrange for an interpreter or a therapist who was proficient in the patient’s language. They may not have a primary care physician (PCP) to help with screening for mental health conditions or provide follow-up care. In addition, the community clinics where BIPOC are more likely to receive care may be understaffed, overcrowded and have long wait times. Understaffing may lead to inadequate screening or even misdiagnosis. And, frankly, the clinic also may not be in a place where the member feels safe traveling so, they may hesitate to go in the first place or return for continued treatment.

Magellan Health Insights: How can everyone, including healthcare professionals, best support minority mental health?

Dr. Rakel Beall-Wilkins: Everyone can help eliminate stigma. Be open to talking and hearing about mental health conditions, and make it clear that you know that having a mental health condition is nothing to be ashamed of. When someone you care about is going through a difficult time, encourage them to get help, and learn ways you can support someone who coping with a mental health challenge.

As healthcare providers, we personally can help by:

• Ensuring we are taking into account each person’s wishes when referring them to other providers: We should ask every patient whether they prefer to see someone of a specific race, ethnicity, gender or sexual orientation.
• Educating ourselves to be more culturally competent and making cultural training a priority for our staff.
• Expanding our workforces with staff from various backgrounds, sexual orientations, cultures and with varied linguistic skills particularly for the unique cultures that are most prevalent in the community.
• Screening for psychiatric conditions during routine visits. Many patients will report physical symptoms instead of talking about the underlying mental health concerns. PCPs and others see many cases of mild or moderate depression during routine care, and screening every patient can help prevent costly emergency visits and admissions. Self-screening tools can also help.

Beyond what we can personally do to educate and equip ourselves and our staff, I believe that the best solutions come from an integrated, collaborative approach. Everyone can help eliminate the disparities. If we work with leaders in the community, for example in churches and schools, we can raise awareness of mental health conditions, destigmatize treatment seeking, help address the social determinants, and improve the lives of everyone in our communities.