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Why lived experience belongs on the care team

Care coordination is about connecting people to the services and supports they need. It is also about understanding what is important to the person and making sure their goals do not get lost along the way.

At Magellan Health, one way we strengthen that work is by bringing peer support specialists onto the care team.

Across multiple states, our Recovery Support Navigation, Family Support Navigation and Youth Support Navigation programs provide adult, family and youth peer support alongside care coordination. These programs often support members and families during some of the most difficult times of their lives. A member may have experienced multiple hospitalizations or be returning home from the hospital after a suicide attempt. A family may be navigating services after their child’s hospitalization or preparing for their child to come home from a residential treatment facility. A youth may be involved with the child welfare system and living in a group home while navigating multiple services and transitions.

A care coordinator can help connect services, address barriers and support transitions from one level of care to another. A peer support specialist brings something different to the relationship: lived experience.

The Unique Role of Peer Support Specialists

Peer support specialists draw on their own experiences of recovery or supporting a loved one, along with their experience navigating systems, to help someone who may be going through something similar.

They are not another case manager or clinician. They bring a non-clinical approach that works alongside, rather than duplicates, other supports. This is the kind of collaboration we want to see across the communities we support, with clinical care, case management and peer support working together while respecting the unique contribution of each.

The peer support perspective can help members and families think through what is important to them, understand their options and raise concerns they may not have known how to express. It can also help the care team better understand what the experience looks like from the member’s or family’s point of view.

Members and families may be working with a health plan, hospital, outpatient providers, community organizations and other services at the same time. Each part of the system may make sense on its own while the overall experience can still feel confusing or disconnected.

Peer support specialists can help identify gaps, disconnects and barriers that may not be visible to others on the care team and bring that information back to the care team.

Keeping Recovery and Resiliency at the Center

When someone has experienced repeated hospitalizations, a recent crisis or years of interacting with healthcare systems, much of the conversation can understandably become focused on risk, symptoms and services.

Peer support helps keep the conversation connected to the person’s life beyond the immediate crisis.

Recovery is about more than getting someone connected to the right service. It is also about supporting people to have greater choice, hope and direction in their lives.

We have seen that in our own peer support programs. Eighty-nine percent of members and caregivers participating in our support navigation programs self-reported increases in all three areas: hope, empowerment and self-determination.*

We have also seen reductions in hospitalizations and emergency room utilization when peer support is added to care coordination. For members with high needs, that additional focus on hope, purpose and what matters to the person can help them remain in their communities and stay connected to the supports they need.

Our internal support navigation programs are not intended to replace services in the community.

They are designed to serve as a bridge, helping members and families through a difficult period and connecting them to community-based peer support that can continue after our involvement ends.

Celebrating Peer Support Specialists

Global Peer Support Celebration Day on October 15 gives us an opportunity to recognize peer support specialists and the work they do every day.

It also falls during National Disability Employment Awareness Month, which makes October a fitting time to recognize the value people with lived experience bring to the workforce.

For some peer support specialists, including me, there was a time when working again, building a career or using personal experiences to help someone else may have been difficult to imagine.

Many have experienced mental health or substance use challenges, hospitalization, disability or other significant disruptions in their lives. Through recovery, training and experience, they are now able to draw from what they have lived through to support another person.

People who have received services become part of the workforce improving those services. People who have needed hope are able to offer it to someone else.

As we recognize Global Peer Support Celebration Day, I am grateful for the peer support specialists across Magellan and across our communities who bring their lived experience to this work every day.

They bring something to the care team that no amount of professional training can fully replace: the perspective of having lived through it.

 

*Data from Magellan 2025 PSOM (Peer Support Outcome Measure) and FSOM (Family Support Outcome Measure). 




Recovery is for everyone. Or is it?

A theme for September’s Recovery Month is “Recovery is for Everyone.” It sounds nice, but is it really true? We’re all impacted by mental health and substance use conditions in some way, whether we live with them or know someone who does. But with 74 million adults and 5 million adolescents in America living with a mental health or substance use condition,[1] is recovery really for everyone?

Where do you stand?

Do you think recovery is possible for a person given a diagnosis of schizophrenia? Is recovery possible for someone in active heroin addiction?

If you think recovery is possible for them, do you expect recovery for them?

Think about it for a minute.

Recovery for me

I am a person in recovery. At the beginning of my journey, I was a teenager with a bright future ahead of me who had been given a mental health diagnosis. It was easy for others to hold hope for me because my accomplishments were a recent memory. Recovery was possible and expected for me.

Today, I have a successful career, an advanced education, a home, and a deep connection to my community. It’s easy for people to expect recovery for me because I’ve proven it’s possible.

But in the middle of my story is endless years of pain and despair. My teenage accomplishments quickly became overshadowed by more diagnoses, hospitalizations, failed medication trials, and a disability determination. The longer my struggles continued the harder it was for me and the people around me to believe my recovery was possible. An expectation of recovery was replaced with low expectations of my abilities, personal responsibility, and chances for a meaningful life.

The irony is that these low expectations quickly became more distressing for me than any symptom I was experiencing. It was the lack of expectation for recovery in my life that brought the soul-crushing despair that nearly ended my life.

Measuring down

My experience is not isolated. It is common to determine someone’s ability to recover based on internal and external factors and then act accordingly. These factors may include a person’s income, education history, employment, housing, support system, family culture, ethnicity, and geography; the number of times they have been in rehab or failed medication trials; and the number of diagnoses, type of diagnoses, drugs used and number of physical health comorbidities. The list could be endless.

Now let’s go back to the scenarios above and add a few more details:

Do you expect recovery for the man you pass at the bus stop who is experiencing homelessness, who hears voices and who has no education?

What about the woman you see at the park who uses street drugs, whose kids are in foster care and who is unemployed. Do you expect recovery for her?

Recovery for everyone in action

Expecting recovery for everyone requires an unwavering commitment to the belief that recovery is possible for every person, no matter their diagnosis, treatment history, or current and past circumstances. The next step after believing recovery is possible is taking action on that belief through communicating with hopeful, empowering language, encouraging risk-taking in the pursuit of recovery, and focusing on strengths versus perceived deficits.

At the systems level, expecting recovery for everyone means:

  • Providing equitable recovery opportunities through services and supports, including beyond traditional treatment delivery systems
  • Outreaching to engage Black, Brown, LGBTQ+ and other marginalized communities
  • Transforming practices and environments to reflect recovery-oriented principles

If we all believed that recovery was for everyone, it would radically change our communities and service delivery systems for the better. It would send a message of hope and save lives during a time when suicide rates in the U.S. have increased 30% from 2000 to 2020.[2]

Imagine what would change if we believed recovery was for everyone.

Join the conversation

We are pleased to host a free webinar, “What I would tell my younger self: Conversations about hope, recovery and the “S” word,” on Wednesday, September 14, 2022, at 3:00 p.m. ET. Register today to hear our presenters share the advice they would give to their younger selves to better navigate mental health and substance use challenges, and engage in the conversation!

Visit MagellanHealthcare.com/Recovery for resources to use and share this Recovery Month and beyond.


[1] Key Substance Use and Mental Health Indicators in the United States: Results from the 2020 National Survey on Drug Use and Health

[2] National Institute of Mental Health, “Suicide” information