There’s no denying that for many of us, our pets hold a special place in our hearts. They’re our loyal companions, can make a bad day better, and love us just the way we are. The First Week of May is National Pet Week. In honor of this, we wanted to take a moment to celebrate some truly amazing animals that have a profound effect on the lives of their owners: service dogs.

Humans and dogs have had a special bond since the early days of our history. So, it’s no wonder we looked to them as a potential resource for people with disabilities who need some extra assistance. Whether it’s retrieving things for their owner, helping them get dressed, acting as their eyes, or alerting their owner of an oncoming seizure or drop in blood sugar, service dogs perform the necessary tasks that make their owners’ lives easier and give them more independence.

In 1929, we were introduced to the first official service dogs in this country – then called seeing eye dogs – who helped people who were blind navigate their surroundings. By the 1960s, people realized that service dogs had the potential to take on other tasks beyond guiding their owners around. By the 1970s, we had created a more formalized set of guidelines and methods for what service dogs could be used for and how to properly train them. In 1990, the Americans with Disabilities Act (ADA) defined a service dog as “any guide dog, signal dog, or other animal individually trained to provide assistance to an individual with a disability.” Service dogs also became protected under the ADA, giving people with disabilities the right to take their service dog with them wherever they go.

Getting a service dog ready to serve their owner takes serious work. According to Aaron Backer, Executive Director of the Wisconsin Academy for Graduate Service Dogs (WAGS), it takes their dogs around two years of intensive training before they can go home with their owner. WAGS dogs begin their training at 8 weeks old so that all they know is how to be a service dog. During the first two years, the puppies are trained by and live with volunteer trainers, who work closely with WAGS staff to ensure the animals have what it takes to be a service dog. The WAGS dogs will not only need to learn 50 to 60 commands, but also to prove that they are capable of being on-call at all times.

“You need a dog that wants to work,” says Aaron. “If you want them to work, you expect them to jump up and say ‘Yep, I’m ready to go!’ It doesn’t mean the dog should be doing something every second of every day. It means when you ask the dog to do something, they’re going to jump up and do it. That’s the kind of dog that enjoys being a service dog.”

               Aaron & Ian

After the puppies have completed their training with the volunteers, the new owners work with the WAGS Program and Training Director to match them with the right service dog. Owners then train with their dogs at the WAGS office in Madison, WI, over the course of several weekly visits before the dog is finally ready to be taken to its new home.

WAGS primarily provides dogs to people with physical disabilities, and they work exclusively with Golden Retrievers and Labrador Retrievers. These larger breeds tend to have a friendly temperament and are motivated to work, making them a particularly good fit for people with physical disabilities and limited mobility. Kinsley Tarr of Appleton, WI, was paired up with Teal, a Golden Lab who was trained by WAGS, in 2016. Teal helps Kinsley, who uses a power wheelchair, by giving Kinsley her paper and pens, helping her put on her jacket, closing doors for her, and carrying her wallet, among other tasks. The two have formed a deep bond, and Teal has become one of Kinsley’s best friends.

“Teal is very smart and fun to be with. Playful and energetic,” says Kinsley. “She’s always a lot of fun.”

Teal isn’t Kinsley’s first service dog. When Kinsley was in high school, she was paired with Hawk, and then after he retired, Kinsley had Shelby until she retired, too. All three of Kinsley’s dogs were trained at WAGS. Kinsley, who is enrolled in the TMG IRIS Consultant Agency, was able to use her IRIS funds to purchase Teal. IRIS (Include, Respect, I Self-Direct) is a Wisconsin long-term care Medicaid waiver option that allows people with disabilities and those who are aging to self-direct their long-term care supports and services.

                             Kinsley & Teal

Kinsley’s mom, Jane Tarr, says that having Teal and the other service dogs has led to a richer life for Kinsley. Not only does Kinsley have more independence since she doesn’t have to rely as much on caregivers, but having Teal has opened up Kinsley’s world.

“Before Kinsley got her first service dog, we found she was struggling with friendship. Having a service dog, it brings people to her and gave Kinsley her own presence in her social environment in school, and it helped her in the community,” says Jane. “The service dog helped Kinsley expand her outlet for communication with friends and family and people she doesn’t know.”

Taking service dogs out in public so that people with disabilities have more opportunities to be involved in their community is an important benefit of having a service dog.  Organizations like WAGS have a deep understanding of all the things that go into creating and maintaining a good service dog – knowing what breed will best fit the person’s needs, having professional trainers to help the volunteers train the puppies, and being available to the owners to help with any issues that may come up with the service dog down the road.

Emotional support animals are different than service dogs. Many people find great comfort and joy in their pets, which is wonderful and why we have pets in the first place. However, there is no certification needed to deem that a dog is an emotional support animal. There are ways, however, to tell if a dog is a properly trained service dog or is simply a pet, says Aaron. When service dogs are working, they will be perfectly behaved. Also, most service dogs will be wearing a vest with text indicating that people shouldn’t try to pet or distract them.

Kinsley’s mom Jane knows that properly trained service dogs do more than simply help people with disabilities go about their day-to-day lives. These dogs show the world that with a little extra help from their canine companions, people with disabilities can live more independent lives. They also give their owners the opportunity  to talk to curious strangers about what work their service dog does for them, and why it’s so important for people with disabilities to continue having the right to use their service dogs wherever they go.

“A service dog can be an ambassador for people with disabilities,” says Jane.

For those lucky enough to have a service dog, they find themselves richly rewarded. It’s no small undertaking to commit to having a service dog, and Jane says she’s so proud of all the hard work that Kinsley has put into training and caring for Teal. Kinsley, in turn, is grateful that Teal is there to help her whenever she needs, and that she’ll always be by Kinsley’s side. Kinsley and Teal have a deep, unconditional love for one another and an unbreakable bond.

“I think Kinsley and Teal are mirrors to each other,” says Jane. “They both have an internal spirit of happiness and they make each other fulfilled.”

Perhaps, though, Kinsley best sums up this special relationship:

“A person with a service dog has a heart that’s full!”

Article submitted by TMG Wisconsin 

There’s nothing quite like a good comeback. It’s a testament to the determination of the human spirit, and a reminder of why second chances can be a great thing. The beauty of a comeback is that it happens in many forms. It could be an athlete getting back on the field after a major injury, or a determined older student going back to school to finally earn their degree. For Adam McCullough, it’s finding his way back into the driver’s seat.

For most of his life, Adam, 28, lived without a disability. He grew up in Holmen, WI, and played college football at Macalester College in St. Paul, MN. After graduating, he got a job at the Minnesota Department of Agriculture as a hydrologist, where he’d gather samples of water from lakes and rivers and test what was in them. But on December 26, 2016, Adam was driving home and crashed his car after hitting an icy patch on the road. The accident left him paralyzed from the chest down.

At first, Adam’s main focus was learning how to navigate life in a wheelchair. Simply getting around his parent’s home on his own was a challenge. He set his sights on building strength through physical and occupational therapy, and took part in trial studies for new treatments. Over time, he regained some movement in his hands. As he became more independent, he realized just how much he missed driving.

“Little things pop in your head,” says Adam. “If I want to go to the grocery store by myself, I just don’t have that option. It’s been limiting, you know? I think anyone can picture that.”

Having made so much progress in other areas of his life, he started wondering if there was a way he’d be able to drive again. After talking with his doctor and doing some research, Adam told his TMG IRIS Consultant, Julie, of his new goal. They started this journey by first getting Adam an accessibility assessment to see what he would need to do to drive again. They then got Adam a learner’s permit so that he could practice driving an accessible vehicle. Adam also needed to take a driver assessment to determine the exact equipment he would need in his vehicle so that he could safely and easily drive. Finally, he will have to pass the Division of Motor Vehicles (DMV) road test to get his license.

Through it all, Adam and Julie have worked closely together. They spent time looking into funding options to cover the driving assessment and equipment, and options to purchase a van. Even when the road got long, they knew that together Adam could reach his goal.

“Julie is there every step of the way,” says Adam. “We educated ourselves and researched everything together. Without Julie, I wouldn’t be talking to you [about driving] right now.”

Of course, Julie is quick to say that Adam has been the driving force behind making all of this happen. His grit and persistence to get back to driving and regain independence is amazing, and she says it’s been wonderful to watch him continue to make progress in many different areas of his life.

“Adam has a passion for self-direction,” says Julie. “He’s coming to me saying ‘This is what I need, this is what I want.’”

In January, Adam was finally able to drive for the first time in two years when he test drove accessible vans to figure out which equipment worked best for him. The driving consultant feels confident that, after a few more sessions, Adam will be able to pass the DMV’s road test and get his driver’s license. He says he was thrilled to be driving his dad around for a change.

As Adam gets closer to getting his license, he’s excited for all the possibilities that will open up. Driving his dogs out to the dog park; getting himself to work on his own; visiting far-away friends. However, more than anything else, he’s simply excited to be behind the wheel again.

“When I get the car, I’ll turn the radio volume up all the way and just drive around by myself for an hour,” says Adam. “My dog will have her head out the window. Me just driving around and torturing people with my singing voice!”

By Carol Sickler, Screen Liaison Supervisor, TMG by Magellan Health

April is National Donate Life Month, and in honor of this, we would like to share a story from Carol Sickler, a TMG by Magellan Health Screen Liaison Supervisor. Fourteen years ago, Carol gave a life-saving gift to her brother, and she’s proud to be a living organ donor. Here is Carol’s story.

On March 18, 2004, I donated my kidney to my brother Lee. He had been in kidney failure for a year due to Berger’s disease (also known as IgA nephropathy) and was on dialysis. Berger’s disease causes the kidneys to become inflamed, which can affect how the kidneys filter waste from the blood. Since only 50 percent of people on dialysis live beyond 5 years, Lee’s best bet for long-term survival was to find a new kidney. I wanted to give Lee a fighting chance.

Our dad had also been on dialysis due to what we believed was Berger’s disease (it was never confirmed because he had other health issues, too). Unfortunately, our father was not a candidate for a transplant, and passed away in 2002 at the age of 72. My brother Steve also has Berger’s disease, but fortunately he has not experienced kidney failure (not everyone with Berger’s does).

Lee and Carol Sickler

Since this disease is hereditary, you might be wondering why I decided to donate one of my kidneys – wasn’t I at risk of Berger’s disease, too? Thankfully for me, Berger’s is primarily a disease found in males. It also tends to show up by the time a person is 40, and I was 40 at the time. So, for me, the risk of developing Berger’s disease was relatively low.

When I first considered donating my kidney, there were so many questions that were going through my mind about both of our futures, and if this was the right choice for us. However, my decision was solidified when the doctors at UW Hospital in Madison told us I was a match for Lee. And not just a match, but an identical match, with all six antigens matching as if we were identical twins, even though Lee is seven years younger than me. The doctors were baffled by this and had never experienced anything like this before. For me, though, I knew then that it was part of my life’s path to move forward and give my kidney to my brother. So, fourteen years ago we hugged and went into surgery together, becoming connected in a way we had never before imagined.

Today, we are both fully recovered and doing well. I personally have no regrets, and no health issues or ill effects from the donation. What I do have is an amazing bond with my baby brother Lee – the depth of this bond is unexplainable, and it’s something I would gladly give my kidney for again if I had to. Because organ donations are treatments and not cures, the kidney donation didn’t cure Lee of Berger’s disease, but it has allowed him to live a fulfilling, healthier life off of dialysis. Also, this gift of life allowed him to have a daughter, Jazmyn Carol, for which our entire family is grateful.

For anyone who is interested in becoming a living donor, there are a lot of great resources at both the www.organdonor.gov and at the University of Wisconsin Living Kidney Donor page. One of the most important things to know is that as long as the donor is evaluated thoroughly and cleared for donation, they will most likely lead a normal life after the surgery. And should a health condition arise because of the donation, there is a priority system in place on the National Transplant Waiting List so that living donors move to the top of that list.

I’m grateful that I had the chance to give my kidney to my brother, and love sharing my story in hopes it will inspire others to give the gift of life.

Stacy Ellingen is a woman from Wisconsin who’s never met an obstacle she couldn’t overcome. After graduating from high school, Stacy left home to attend the University of Wisconsin-Whitewater. After graduating with a degree in journalism and advertising, she moved to Oshkosh. Now in her thirties, Stacy leads a busy professional life as a small business owner and an independent contractor with InControl Wisconsin, an organization that plays a key role in advancing self-directed supports in the state. She’s become more involved in disability advocacy efforts and the community.

Stacy’s story is a successful one—living independently for more than five years, finding a job about which she is passionate and becoming involved in her community. But now consider this success as part of Stacy’s larger story – she grew up with cerebral palsy, resulting in complex physical support needs. However, Stacy grew up believing that she could do everything others do. Working with her self-directed support consultant, Kathi Miller, an employee of TMG by Magellan Health, Stacy proved she could do everything others do.

“Kathi has helped me reach my goals in many, many ways,” Stacy said. Kathi and Stacy joined forces to identify community home care providers to support Stacy in meeting her daily needs at home and at work. They partnered to identify ways that Stacy could make responsible budget decisions in purchasing services to meet her goals. When developing her small business, Kathi supported Stacy in connecting with the local business community to create professional peer connections that enhanced her business development strategies. “Most of all though, Kathi encouraged me to keep moving forward when things got tough! She has been amazing!” said Stacy.

Thirty years ago, President Ronald Reagan deemed March to be Developmental Disabilities Awareness Month. Awareness months are an important advocacy tool, as they provide opportunities to reflect on progress and continue meaningful conversations about the future. For many people with developmental disabilities, ensuring these discussions take place can be the difference between being invisible and living as full citizens in their communities.

Developmental disabilities awareness is something near and dear to me, not only as the president of TMG by Magellan Health—supporting the largest self-directed long-term services and supports program of its kind in the country—but also because of my graduate work. During my practicum, I worked on the South side of Chicago, assisting low-income families who had children with developmental disabilities. Too often, these families, many of them single mothers, struggled to find the necessary services to help their children live as independently and inclusively as possible. The isolation the children experienced was heartbreaking.

Fortunately, in the 20 years since then, I’ve seen wonderful strides in the resources available for people with developmental disabilities, as well as greater expectations for community inclusion. Self-direction has played a crucial role in this progress. With self-direction, individuals choose not only the services they receive and who provides them, but also how they live their lives. This means people have control over things many of us take for granted: living where and with whom we want; making our own schedule; having meaningful, lasting relationships; pursuing our hobbies and passions; and finding meaningful work or volunteer opportunities. There’s been an amazing nationwide movement towards self-direction, which is not only a best practice, but also the cornerstone of TMG’s work in Wisconsin’s innovative IRIS (Include, Respect, I Self-Direct) program.

While there’s been great progress in raising expectations and increasing opportunities and resources for individuals with developmental disabilities, there’s still much to overcome on the path towards greater acceptance and inclusion. Thankfully, as community inclusion and self-direction are becoming more commonplace, society increasingly recognizes the contributions that people with developmental disabilities can make. As a leader in helping individuals create healthy, vibrant lives, Magellan Health is at the forefront of self-direction with its Wisconsin program, and is building a strong self-direction component in its new managed long-term services and supports (MLTSS) program, Magellan Complete Care of Virginia.

So as you make your way through March, take time to think about the people in your life and in your community and how we can all support one another. Learn how to be a better advocate for individuals with disabilities at sites such as ACL.gov and NACDD.org, and read stories of self-direction in TMG’s The Path Ahead. Encourage and support inclusion and independence whenever you can. But mostly, take the time to get to know people for who they are and appreciate their individual gifts and talents.